Epidemiologist reacts to removal of certain health data, information from CDC website

Certain data and web pages with the health information related to gender and equity have been removed from the centers for Disease Control website and the changes are to comply with President Trump’s. Executive order to eliminate federal Dei programs And federal staffers have been warned of severe consequences if they do not comply with.

The orders With me now is Doctor Jennifer Dusseault.

She is a professor of epidemiology at Brown University and the director of the Pandemic Center at Brownes University’s School of Public Health Doctor Nunzio good morning to you.

Let me start with some of these web pages.

A page entitled facts about LGBT Youth Suicide and another page about creating safer schools for Lgbtq youth.

Both of those are gone.

You could eliminate the pages You can’t eliminate the people.

What are the consequences of, what’s implied by the elimination of these pages on these public health website Yeah? So these have been deeply disturbing developments.

What we’re seeing is sort of widespread tampering and dismantling of really critical public health data This.

Is happening at the direction of politicos, not scientists. Now there’s a reason why these data were collected.

They’re critically important for health agencies, particularly in our communities, to know how to protect us to know where in our communities needs are greatest and how to direct the very limited resources we have to protect people So taking away the data just makes that job Harder There’s, you know, never been this level of just sort of dismantling and tampering with data that we’ve seen, And it is deeply concerning And it’s only going to sow really distrust in the federal government, And I just don’t Think that there’s any you know I just don’t think that that’s in anyone’s benefit You phrase.

It is taking away the data, And this is what I’m interested in.

Is this from the public health community an assumption that it’s short lived? I mean at some point there will be an administration that believes that transgender people exist and may be willing to make that information public again.

The question is: do you believe at that point it will be retrievable? Is there fear that the data will just be gone Yeah, So, first of all, there’s a lot that’s unknown And a lot of these actions, I think, are happening in part because the directions that have come out of really the white House have Been so broad that they’re just very hard to interpret So what you’re seeing is really sort of widespread changes being made in part because of lack of guidance, so that’s just one of the problems.

The other problem is that you know there are actual changes being made to the data So, for instance, changes like removing what had been a category of gender that gives sort of multiple descriptions of who is being affected by certain diseases and trying to reduce that to The binary category of sex, male or female, Now for people who aren’t epidemiologists.

That might not seem like a big deal, but there is a reason why public health professionals have been wanting those more granular data, because they help us better understand what is happening in our communities and understand who we have to reach out to in order to make Our communities safer, So that kind of change that’s happening is also really important.

Now the federal data that are being taken down and just to say that you named a few sites, but we have seen sort of widespread data disruptions since these orders have been given, And I think there’s a lot of questions about when it’s.

Going to end, I will say that you can’t really keep data behind a lock and key, And you know in those amount of days there have been groups all across the country that are trying to do that have been downloading the data set.

So what has been collected so far does exist, but there are questions about whether we will continue to collect the data we need and share that information with our communities so that our communities know how best to protect themselves. Yeah Weekly reports, public statements from FDA and CDC embargoed unless approved by an appointee a senior level Trump administration delegate.

What is the impact? Take it for a second out of your profession and put it into my life.

What’s the impact of not getting? Those reports So first of all, information and communication is one of the most important public health tools that we have And it’s not just the reports that are not coming out.

It’s.

Also, the fact that our health agencies have been unable to get on calls with our state and local health officials.

They have been unable to share really important information about what’s happening, not only in the United States but the rest of the world.

The things that could be coming to our communities to affect us.

Why is that important? Well, right now we have multiple ongoing, very concerning and in some cases, deadly outbreaks happening, not just here in the United States, but in the rest of the world.

So there’s been avian influenza, which is a really concerning situation that we need minute to minute information on There’s also in the United States, one of the largest tuberculosis outbreaks happening It’s happening in the American heartland.

We need to know what’s going on with that across the the pond as it were. There are multiple viral hemorrhagic fever virus outbreaks, things like Ebola and Marburg virus deadly viruses.

We know that infectious diseases don’t stay put and they don’t take a break, And so we need to get up to the minute information about what’s happening with those outbreaks so that we know what risk it poses to American communities.

And what communities need to do to protect themselves Yeah And when CDC can’t even talk to our health officials? They cannot fulfill their statutory obligation to protect America.’s, health.

You know it’s interesting.

I read a piece in New York Times this morning about how the stop work on foreign aid has stopped some of the services around the world to try to stop the spread of some of those diseases as well doctor Jennifer Naso.

Thank you so much for your time and expertise.

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